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Stoned

This is long, boring, and unneccessary but I wanted to put the frustrations I’ve been having into words. I mentioned before how I’ve been going through medical issues for the past year and a half and I was going to leave it at that. But, I bitch and whine to my husband about it so much, I thought writing about it would help. I swear, I get the weirdest fucking medical problems. I’ve had an issue of getting salivary stones for years.

I never even knew something like this existed and for seven years, I would get this horrible pain on the right side of my neck when I ate or drank anything. I could feel the submandibular salivary gland get hard as a rock and cause so much pain and itchiness from below my chin, up into my right ear.

It may not seem like a big issue but I couldn’t even take a sip of water without the salivary gland flaring up.

When we moved to Seattle, I was finally able to see civillian doctors instead of military ones and the ENT there diagnosed me. I had surgery to take out the stone within the week. My one request was if she was able to save the stone, I would love to see what was making my life hell for seven years. She was more than happy to oblige and I still have that damn stone in a box somewhere.

After that, I would get frequent infections and flare ups in that gland. I had the option years ago to have that gland taken out but I was really hesitant. To be honest, it was because of the horrible experiences I’ve had with military doctors over the years and the incompetence so, there was no way I wanted one of those doctor’s to cut me open.

Things seemed to simmer down until last August when I had this horrible pain in the gland and it got so bad, I could barely move my tongue. Luckily for my husband, I wasn’t able to talk much for a few days until the antibiotics kicked in and I got some relief.

It cleared up, or so I thought, and then boom, it came back a few weeks later. I was referred to an ENT and he was pretty quick to say the gland really needs to come out. The hesitation came back about having this surgery, especially since I had three others within months of this one.

But, I decided to finally get it over and done with once and for all. The doctor didn’t feel the need to do a CT scan which still pisses me off because he didn’t think I had any stones in there and it was just the salivary gland that was infected. I had the surgery and I thought I was fucking done with all of the medical shit I had been dealing with.

Just when I had celebrated being done with this bullshit forever, the symptoms came back. The itchiness, the pain, and additionally, something that felt like a hot fire poker on the floor of my mouth. This time, a CT scan was done and yes, I was stoned from another stone. The ENT also noticed that a fucking hole was what had developed in the floor of my mouth as a way for my body to try and expel the stone that had been in there for who knows how long.

I know. It’s really fucking gross.

I had surgery for that five months ago and again, thought I was done. done. done.

Nope. Not even close.

I come to find out that the duct to the submandibular salivary gland was still in there because there’s a nerve to the tongue that wraps around the duct and it can be tricky to take out. It can cause permanent paralysis on the right side of the tongue.

Oh joy.

I could also tell at this point that the ENT didn’t know what the fuck to do with me. So, he put me on antibiotics.

The infection went away.

Then it came back and he put me on antibiotics again.

Basically, my whole summer was spent dealing with these gross infections and taking an overload of antibiotics which I absolutely hate. I not only worry about antibiotic resistance but also, if feels like my stomach is being shredded. I’ve been on half a dozen different kinds of antibiotics and also found out by way of another CT scan I had in August is that there are now smaller stones in my sublingual salivary gland.

Fucking fuck.

I was frustrated, my doctor was frustrated, and I was pissed off. I don’t feel like my normal self at all. My body is tired of fighting these infections. My ENT finally waved the white flag and referred me to a doctor in Boston.

I saw him last week and he hasn’t seen my scan results yet but felt at least two stones in the floor of my mouth.

His plan is to take out that fucking duct that’s probably causing these stones, and taking out however many stones are actually in there… besides the two he felt.

It looks like the surgery will take place in the next few months.

So, that’s where I’m at now…. hurry up and wait. That’s what it feels like. This new ENT doctor wants to act fast but there’s that waiting game of making sure this is the best plan of action.

This whole thing has my anxiety so out of whack. I just hope that soon I’ll be feeling healthier again.

Hopefully, more like myself than I’ve felt in the last 18 months.

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To The People Who Dance Like Nobody’s Watching

For the past six months or so, my anxiety attacks have started as early as before I even open my eyes, which is a rather new thing considering most of those attacks were usually happening at night, and I needed to cut out the news. It was making me feel completely suffocated to know of all the harm that was happening not only in the United States, but around the world.

Of course, I don’t live under a rock so the news seeps into my life on a daily basis. I’ll check in on one of my fave gossip sites to see who got married, who broke up, who had a baby, who went to rehab for “exhaustion”, who is losing their shit, etc., except there will also be news on there about the hot mess going on in D.C.

As much as I try to escape it, the real news of the world oozes in. Like the flow of lava. Destroying and burning down my small safe space of comfort.

There aren’t enough adorable puppy photos to cure these blues that are currently happening.

The pleas and desperate help that Puerto Rico needs.

The shootings in Las Vegas.

These events are so shocking and sickening. I just can’t wrap my mind around this kind of devastation.

Besides the daily stresses I go through every night while lying in bed, the happenings of the world also keep me up at night.

For some reason, when I try to be mindful and think happy thoughts, my mind goes to an Andrew Bird concert I went to last October. My mom had been visiting us for the first time in at least six years and it felt like a perfect night.

Towards the end of the show, the lights went down in the concert hall, the disco ball was lowered, stars scattered all across the arena, and there was a woman who was standing to my left. She was dancing in a way that honestly gave me second-hand embarrassment at first. She was moving her body along to the music and didn’t give one flying fuck what anyone thought, including me who quickly saw how judgemental I had been for a few quick seconds.

This woman who danced so freely is someone I hope to be someday.

Going through the rhythm of life and moving in the way that feels natural to me, no matter how ridiculous it may seem at first to those who are watching. I want to be able to drop my guard and be my true self, no matter how much it’s out of my comfort zone.

During these really difficult times, we should all be the kind of people who dance like nobody’s watching and show the kindness and goodness that so many people are very much needing right now.

This is not about politics for me.

This is about decent, human kindness that very few in current high-powered positions just don’t have.

People try to normalize the behavior of someone who is supposed to be the leader of my country and they are failing time and time again, spewing out hatred and insincerity.

So, I’m going to make an effort to go through the present, dancing to life the way that I want no matter what my conservative family members think. That’s including a cousin I adored and looked up to, my sister, and an uncle.

But, unlike them, I don’t take kindly to judge people based on their skin color or religion.

It may seem extreme to cut out family members but the decisions being made by the United States government is absolutely devastating people’s lives and ruining as well as breaking up families.

I no longer care if I’m a “special snowflake” for basic human rights and respect given to all people, no matter what their lot in life is.

Everyone deserves to have a happy life and stability. People should be allowed the freedom to come to the U.S. to make a better life for themselves.

Everyone deserves the chance to dance like nobody’s watching, without limitation or prejudice.

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I’m A Mess

This past year and a half has been very difficult for me. I had five surgeries within 14 months, starting in 2016. It’s why I haven’t really been blogging as often as I’d like. I won’t bore you with the details of the surgeries but they came in such rapid succession and that’s what has made me go from anxiety with occasional panic attacks to my current state which has transformed to severe anxiety with frequent panic attacks, including the dreaded anxiety attacks first thing in the morning.

I didn’t take as good of care of myself as I should have with each recovery from surgery and it’s definitely taken a toll on me. I feel so anxious all the time and my body still feels like it’s in recovery mode. It’s been frustrating for me because I’m still not 100% physically and the frustration leads to anxiety which leads me to have panic attacks.

If you’ve never had a panic attack, you’re very lucky. Mine starts out with feeling a sense of dread. My heart starts pounding. It’s difficult to catch my breath. My mind starts racing. I feel dizzy. My heart gets to where it feels like it’s going to beat out of my chest. I feel like I’m going to give myself a heart attack. The sense of dread increases. My heart’s beating so fast, my mind is racing, I’m feeling dizzier, and there are times I even get so worked up that I throw up from the anxiety and panic. It feels like I’m a prisoner in my own body and want nothing more that to escape myself.

So, for the past 18 months, my anxiety has grown to where it can be debilitating at times. I’m getting more concerned now because this is the time of year that my depression starts rearing its ugly head.

Since I cut out all news out of my life last month, the anxiety has become a little more manageable. I’ve been trying to ride out the panic attacks without reaching for my xanax prescription but that can be really difficult. Hmmm, would I rather feel like I’m in a fight or flight state of panic for half the day or should I take something that I know in 20 or so minutes will have me feeling more in control of my thoughts? But, I don’t want to have to depend on medication every time.

The problem is, I still have an ongoing medical issue and while I’ve had two surgeries for it where I thought both times that I’ll finally be feeling healthy again and won’t have to deal with this problem anymore. Low and behold, once I’m confident it’s finally not an issue anymore. the fucking thing pops back up. I feel like there’s no end in sight and my ENT doctor has been calling this “unusual and rare”.

He seems to be at a total loss about what to do and mentioned sending me to Boston. For now though, he’s waiting to see if medication will help. I know it’s not going to because in the past it never did.

I’m just feeling so frustrated and at a loss.

What I’ve been missing is writing. I know that’s something that will help clear my head and help my anxiety while also giving me an escape from these ongoing medical issues.

I just don’t know if I can still keep up the blogging, not that I’ve really been keeping it up that often. But, I’ve been blogging for over seven years now and I’m not quite sure I can completely let it go. So, for now, I figure what the hell, even if I don’t have much to say, I should just write anyway. It’s such a nice vacation from my anxiety ridden mind and the physical pain I’m still in.

So, now you know what’s been going on since last year. It feels good to clear the air and talk about the terrible time I’ve been having.

I know I’ll get through this rough time but right now it feels like it’s going to last forever. I’ll leave you for now by saying thank you for listening to my issues.

I’ve got issues, you’ve got them too, so give yours to me and I’ll give mine to you.

Your welcome for getting that song stuck in your head.

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Silence

The other day I was wondering what you were doing but then I remembered you were gone. I can’t believe it’s been seven years, eight years, nine years, ten years, eleven years, twelve years, thirteen years since you left us so early. Even though we didn’t always get along, I loved you like a sister.

It’s not surprising, we had known each other since preschool. Our moms were great friends. We would spend Christmas Eve at your house and get a personal appearance from Santa Claus.

I even remember being at your house when they debuted Michael Jackson’s video, Thriller. Your mom was peeking through her fingers the entire time. As you got older, you grew your hair long. It was the most beautiful brown hair I have seen.

You were at my wedding but I was so overwhelmed with people that I never got a chance to say hello. I’ve seen my wedding video and watched as you stood aside while I greeted people. There is so much guilt I feel because of that.

You moved out of the small town where we lived. I had moved away several years before. You got married but by then we had lost touch. I would always ask my mom how you were.

I’ll never know what led you to take your own life on that day in November. Your mom has never recovered. Nobody will be the same. The shock of it was with me for months and then disbelief set it. It has been with me since.

I was never angry at you but I wish you would have talked to someone, anyone. I still can’t accept that you are no longer here, even after thirteen years. I will still catch myself, wondering what you’re doing.

*www.save.org/

*National Suicide Prevention Lifeline: 1-800-273-8288

*Just Breathe

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I’m Finally Ready

Well, as ready as one can be after losing a child.

After we lost Ben, it took some time to receive his ashes. When we finally got them, we quietly decided that the best thing to do at the time was to lock them in our safe.

While we didn’t speak the words, I think it was mostly because we weren’t ready to accept it. So there his ashes sat, locked away along with our feelings about such a tremendous loss.

Recently, I felt it was time to take them out. Time to slowly face what happened, as difficult as it is.

The loss is too great and I still can’t seem to find the words to express my grief.

The pain comes in waves and I think the reason that it happens that way is because if grief came all at once, it would be too overwhelming to handle.

Too heartbreaking.

So much more heartbreaking and devastating than it already is when dealing with this grief every day.

But I’m finally ready to take this first step.

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A life taken way too soon.

*Please know that what follows is extremely upsetting and disturbing so if needed, click off now. Thank you. xo

bb1

Over the weekend, a close friend from high school had an unimaginable loss. His niece and his twin brother’s 22 year-old daughter was killed. She was 7 months pregnant with her son and has a precious 2 year-old daughter.

The man that killed her was her boyfriend and the father of her unborn child. Briana left behind many loved ones who are understandably in so much pain.

A Go Fund Me account has been started in her honor.

I would never usually ask this (honestly, I feel very uncomfortable doing so because I don’t want anyone to feel pressured) and haven’t done anything at all like this on my blog in the 4 years that I’ve had it, but if you can help, please do. Any amount would help her family.

Even if you are unable to donate, I ask you from the bottom of my heart to pass this on in any way that you can. Any way at all. Whether it’s on Facebook, Twitter, through a link in an email, anything.

Her young daughter, Bonnie, is now without her mother and this family would be so appreciative. Here is Briana’s Go Fund Me page where you can get more information.

This is such a huge reminder to hug your loved ones extra tight.

Thank you all so much. xoxo

Updated:

Updated: Please keep spreading the word for Briana’s family. Thank you!

From Uncle Mike – Thank you dear friend for your help spreading the word. Your friendship has been a great medicine thru all of this. And on behalf of the entire Seyer family, I would like to thank those who took a moment to share, forward, pin, or even just took a moment to hold a kind thought for my niece and her son. This afternoon we layed them both to rest. It was the hardest day I believe I have ever known. But, now comes the long road to bringing her killer to justice. But not today; today I remember her and I give thanks for those who cared. Thank you, sincerely.

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Benjamin

I went into preterm labor at 28 weeks pregnant. There were complications that I’d rather not get into right now and despite the best efforts of my doctor and nurses, we lost our son, Benjamin.

The little hummingbird isn’t really aware of what’s been going on and I’m not sure how to break it to a 4 year-old.

Earlier today, I had to fill out a cremation form and pick out an urn for my son. I wish all of this was just a nightmare.

I want to thank you all for your continued support.

*Sovay

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